Henry’s Story: A Journey of Strength, Resilience, and Love

Henry’s Story: A Journey of Strength, Resilience, and Love

At Mi Health Services, we believe that every story has the power to inspire, educate, and bring people together. Today, we are honored to share the journey of Carlo Bionda and his son, Henry – a story that is both heart-wrenching and uplifting. Henry’s story is a testament to the power of resilience, the importance of early intervention, and the unwavering strength of a parent’s love.

A Healthy Start – Or So It Seemed

Henry was born a healthy, full-term baby. After four joyful days in the hospital, Carlo and his wife, Teena, brought their precious little boy home, excited to begin life as a family.

But their happiness turned to fear one night when Teena woke up to feed Henry. Something wasn’t right. Henry felt floppy in her arms. Trusting her instincts, Teena immediately called an ambulance. That decision would set off a series of events that would change their lives forever.

The Diagnosis: B2 (Riboflavin) Deficiency

At the hospital, doctors discovered that Henry had suffered a metabolic episode, later diagnosed as B2 deficiency, a rare and serious condition. Riboflavin, or vitamin B2, is essential for the body’s metabolic processes. Without it, the body’s ability to produce energy and support vital functions is impaired.

Henry’s metabolic episode was severe and led to his hospitalization for two weeks in the ICU at Queensland Children’s Hospital (QCH). During this time, his family faced immense uncertainty and fear. Despite the best efforts of his care team, the metabolic episode caused Henry to suffer a brain injury that would have lasting effects on his health and development.

Living with Epilepsy and Behavioural Challenges

The brain injury Henry suffered led to a diagnosis of epilepsy. Today, Henry experiences multiple seizures every week, despite being medicated with Keppra, a common antiepileptic drug. Unfortunately, the medication doesn’t always stop his seizures, leaving his parents in constant worry about further complications or damage.

Seizures aren’t the only challenge Henry faces. The effects of his condition include behavioural issues, which can make everyday activities unpredictable and emotionally demanding. Recently, Henry was also diagnosed with Autism Level 2, adding another layer to his unique journey. His autism brings challenges in communication, sensory sensitivities, and navigating the world around him.

Navigating Life as a Parent

For Carlo and Teena, living day-to-day with the uncertainty of Henry’s health has been both heart-breaking

and overwhelming. The frequent hospital visits, therapy sessions, and unrelenting worry about their son’s future require a level of strength that few can imagine.

Despite these challenges, Carlo has faced this journey with remarkable courage and determination. While supporting Henry through his medical and developmental needs, Carlo also pursued his dream of becoming a Registered Nurse (RN). Balancing his studies with his responsibilities as a parent, Carlo successfully graduated and now uses his personal experience and compassion to help others in need.

Carlo’s journey is an inspiration to everyone who knows him. His ability to provide love and care for his son while achieving his professional goals is a testament to the power of resilience and the human spirit.

Why Henry’s Story Matters

Henry’s story shines a light on the importance of:

• Early screening and intervention: Teena’s quick decision to call an ambulance and the diagnostic heel prick test were lifesaving. Early detection of rare conditions like B2 deficiency can prevent severe complications.

• Raising awareness about rare conditions: Families facing metabolic disorders, epilepsy, or autism need access to resources, understanding, and support.

• Building strong support systems: Carlo and Teena’s journey highlights the critical role of community and professional care in navigating these challenges.

Educational Facts About B2 Deficiency

• What is B2 deficiency? It occurs when the body lacks riboflavin, a vital vitamin essential for energy production and nervous system function.

• Symptoms:

  • Fatigue and weakness

  • Irritability or poor growth in infants

  • Sensitivity to light

  • Cracked lips or sores at the mouth corners

  • Neurological symptoms like floppiness or muscle weakness in severe cases

• Treatment: B2 deficiency is typically treated with riboflavin supplements and dietary adjustments. In severe cases, early intervention is critical to prevent long-term effects.

• Food Sources of Riboflavin:

  • Dairy products (milk, cheese, yogurt)

  • Eggs

  • Green leafy vegetables (spinach, kale)

  • Fortified cereals and grains

  • Nuts and lean meats

Moving Forward

Today, Henry continues to face challenges, but he also inspires those around him with his resilience and strength. At Mi Health Services, we are honored to support families like Carlo’s and to share stories that raise awareness, promote understanding, and build stronger communities.

We hope Henry’s story inspires you to take action, whether it’s learning more about early screening, supporting families navigating similar journeys, or simply sharing this story to raise awareness. Together, we can make a difference.

Join the Conversation

Do you have a story to share or words of encouragement for Carlo and Henry? Leave a comment below or reach out to us. Let’s continue to support one another and build a more inclusive world.

#HenryStrong #BirthDefectsAwareness #EpilepsyAwareness #AutismAwareness #B2Deficiency #MiHealthStories